FOR being awarded Local Woman of the Year presented by The Hon Minister Pru Goward, Mr Alister Henskens SC MP and The Hon Paul Flecture MP.
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northshoretimesFund raiser has passion for People

By Rebecca Parish – Northshore Times

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World Lupus Day

Whereas, lupus is a serious and incurable autoimmune disease that can cause life-threatening damage to any organ in the body; and,

Whereas, lupus is a global health problem that affects millions of young women, men and children of all nationalities, races, ethnicities, genders and ages worldwide; and

Whereas, many physicians worldwide are unaware of symptoms and health effects of lupus, causing people with lupus to suffer for many years before they obtain a correct diagnosis and medical treatment; and

Whereas, medical research efforts into lupus and the discovery and development of safer, more effective treatments for lupus patients are under-funded in comparison with diseases of similar magnitude and severity; and

Whereas, people with lupus will face a lifetime of living with the unpredictable and life-changing health effects of this disease; and,

Whereas, there is a deep, unmet need worldwide to educate and support individuals and families affected by lupus; and

Whereas, there is an urgent need to increase awareness in communities worldwide of the devastating impact of lupus,

Now, Therefore, Be It Resolved that 10 May 2017 is hereby designated as World Lupus Day on which lupus organizations around the globe call for increases in public and private sector funding for medical research on lupus, targeted education programs for health professionals, patients and the public, and worldwide recognition of lupus as a significant public health issue.


LUPUS: An Invisible Monster

As part of our campaign for Lupus Awareness Month this October we are sharing a video compliments of Lupus UK  who created and launched a brand new animated video called, ‘Lupus: The Invisible Monster’. The aim of the video is to demonstrate some of the effects of living with the disease as well as highlighting its often ‘invisible’ nature. The video is available to watch on

The video has been very widely shared on social media and accumulated almost 6,000 views in its first 48 hours. The feedback received so far has been overwhelmingly positive, a few highlights include;

  • “Best video I’ve seen to explain how I feel on a daily basis”
  • “This video sums lupus up perfectly. It starts just at the perfect part saying all lupus sufferers experience it differently…it’s so different in all of us; it’s like our finger print. No two people have the same. Very well done to the team for doing such an informative short video. Thanks.”
  • “This is so accurate. Perfectly describes what lupus does to you physically, mentally, socially, and emotionally”

Make a difference in a positive way. Donate

Thanks to people like you who bring new money to the fight, the Lupus Association of NSW  works with experts and deploys resources so that we can make progress toward solving the cruel mystery of lupus and ending its devastating impact. Your donation supports our mission

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