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Dermatology Conference now Lupus Aware (Monday May 10th,2008)

The Lupus Association attended the 41st Scientific Conference of the Australian College of Dermatologists.
Many dermatologists stopped by to learn more about lupus and what they could do to help. 


A Splash of Orange sees Gala Dinner a Success (Saturday May 10th,2008)

The Members Pavillion of the Sydney Cricket Ground hosted the 2008 Lupus Association Gala Dinner, where over 100 people enjoyed the fine food and music of this very special event that raised an estimated $10,000 for lupus research.

Entertainment was superb with Urban Eccentrics playing plenty of great music, throw in a tango dancing lesson and Annette our resident butterfly painter who was painting live for all to see.

The auctions were a great hit with everything from a Bradman signed bat to a SCG Corporate Box going under the hammer.

The speakers were enthralling with Ann Maree Skelton telling the story of her best friend Bronwyn who passed away earlier this year as well as Catherine Vanisi who told her own story of coming to terms with a disease that has impacted not just on her life but also on the lives of two of her three sisters.

Thanks must go to Robyn Spencer of Harmony Events for volunteering her time and effort as well as Judy Rough as Chair of the Gala Dinner Committee. 

Thanks to all of those who volunteered leading up to and on the night itself, and those very generous people and companies that supported us on the night. 

SGC Trust Reynolds Florist  Baxter Health Care Dick Smith Electrical   Heliflite  
WC Penfold ANZ Private La Renaissance Café Patisserie Captain Cook Cruises,  

Maxine McKew MP attends World Lupus Day Open House (Friday May 9th,2008)

Maxine McKew MP was in the thick of World Lupus Day at Hook House this year both as a special guest and as the presenter of the annual recognition awards. 

The new member for Bennelong took her role very seriously mingling with members and asking plenty of questions while afternoon tea was served. She then presented all of the staff, volunteers, members and corporate supporters with their awards. 

Highlight of the afternoon was the presentation of:
   Youth Volunteer of the Year to Lauren Hafner and Volunteer of the Year to Toyo Sastro.


Maxine McKew with Award Recipents and Executive Officer Ben Jackson

 

 

Losing your Hair over Lupus

 

Nicole Lucas had a point to prove: Not enough people know about lupus!

On the 4th of March she went about changing that in the only way she thought she could make an impact: She shaved off all of her hair.

Not content just to raise awareness in Orange, which lies past Lithgow and Bathurst in the west of NSW, she made it a fundraising event as well. It turns out that there are plenty of people willing to see Nicole without a full head of hair and she raised over $1200 for the Association.

Well done and thanks Nicole, hope the hair grows fast!

The Long and the Short of Lupus in Orange

John and Linda Hannaford

Debbie and Jennifer from The Commonwealth Carers Association

Patrick Raftery talks feet and lupus

Two people feet apart in stature, share the same enthusiasm for educating people about lupus. 

John and Linda Hannaford are at either end of the height scale but they are an awesome team when putting on an education seminar. Guest speaker Patrick Raftery, a local podiatrist, spoke on good care of your feet and the ramifications for those living with lupus.

Debbie and Jennifer, representatives from the Central West Carer Commonwealth Respite Centre, spoke about the role of carers and the support that carers have available to them. You can get more information from www.commCarelink.health.gov.au

The final speaker was the Association’s own Executive Officer who spoke about lupus, the Association and the benefits of being a member. There were plenty of questions from the nearly 50 participants, who enjoyed the Ex-Services Club’s generosity in supplying the facilities for the seminar.

Quilt Raffle Starts Today

To finish off a really informative morning Hogan’s Pharmacy and Chem Mart, Peter Smith Pharmacy generously donated lucky door prizes.

Four representatives from Joan’s Quilting Group arrived at the Lupus Association doorstep today with the prize for our 2008 Quilt Raffle. 

Pauline Hutchinson is living with lupus but that doesn’t stop her leading an active social life, while also spreading understanding of what is a debilitating and as yet incurable disease.

When asked the ladies who delivered this beautiful prize could only guess at the time gone into creating such a masterpiece. Hand stitched butterflies adorn the quilt, with other butterflies in fabric appearing at regular intervals to follow the butterfly theme that the Association so commonly uses.

Tickets are $2.00 each and there are only 1000 tickets on sale. 

The draw will take place on May 9th at Hook House during our World Lupus Day Open House.

Lupus Association Christmas Party

 


 

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Upcoming Events

 



Event

 

Date Time Venue Contact
TBA        
         

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World Lupus Day

The first-ever World Lupus Day (WLD) was observed on Monday May 10, 2004, to coincide with the 7th International Congress on SLE and related conditions in New York City, NY, USA

World Lupus Day Action Plan (PDF - 54kb)

World Lupus Day Proclamation WHO (PDF - 75kb)

World Lupus Day Proclamation Organisation (PDF - 75kb)

World Lupus Day Sample Letter (Word - 35kb)

Congress Report by Prof Schrieber as it appeared in the September 2004 newsletter

Congress Report by S. Mariani MD PHD- Novel Therapies for Systemic Lupus Erythematosus

Congress Report by S. Mariani MD PHD- Nephritis: Diagnosis Therapy and Outcomes

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Lupus Awareness Month

Events will be announced as they are confirmed.

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 Support Group Meetings

Support Group Meetings are meetings for anyone living with lupus/Sjogren's syndrome and their family and friends. It is an opportunity for you and your family and friends to share their experiences in how they are living with lupus and the impact of lupus on their lives. You do not have to be a member of the Lupus Association to come to Support Group Meetings.


Meetings



Location

When

Speakers
ACT The Southern Cross Club
Woden, ACT
TBA Informal meeting - All Welcome
Contact Lupus Association - 
1800 802 088 
Blacktown Blacktown Workers Club
Campbell St, Blacktown
16th June
21st July
18th August
15th September
20th October, 17thNovember

December - Xmas lunch to be advised.

10.30am to 12.30pm

Informal meeting - All Welcome
Carol Page 9671 4878 or 
0403 304 833
Bankstown Coolaburoo Neighbourhood Centre, 5 Polo St, Revesby, Opp Bankstown Square 19th February
15th April

3.00pm

Informal meeting - All Welcome
Contact Lupus Association - 

9878 6055
Eastern Suburb Cucinas, in Randwick Village, Randwick 5th February
1st April
Informal Meeting - All welcome Contact
Margaret Kennedy
9665 0060
Hook House 55 Wicks Rd, North Ryde 5th February
1st April

1.30pm to 3.30pm

Informal meeting - All Welcome
Contact Lupus Association - 9878 6055
Sutherland The Boardroom
Level 4 
Sutherland Hospital
13th July
11th July
8th August
12th September
10th October 
14th November
12th December
(Xmas party day) 

10.00am to 12.00 noon

Informal meeting - All Welcome
Contact Narelle Baker 
9567 8351
Orange New Venue Coming! TBA

10.00am to 12.00 noon

Informal meeting - All Welcome
Contact Linda Hannaford 902) 6362 1650
Wollongong Venue TBA TBA Informal meeting - All Welcome
Contact Jill Banister (02) 4256 6730

 

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Lupus Links

Lupus Links is our News Letter and its for the Lupus Association's Members Only, click here to download the December - Lupus Link

In The Loop

Click here to download the December - In The Loop