Dermatology Conference now Lupus Aware
(Monday May 10th,2008)
The Lupus Association attended the 41st Scientific Conference of the Australian College of Dermatologists.
Many dermatologists stopped by to learn more about lupus and what they could do to help.
A Splash of Orange sees Gala Dinner a Success
(Saturday May 10th,2008)
The Members Pavillion of the Sydney Cricket Ground hosted the 2008 Lupus Association Gala Dinner, where over 100 people enjoyed the fine food and music of this very special event that raised an estimated $10,000 for lupus research.
Entertainment was superb with Urban Eccentrics playing plenty of great music, throw in a tango dancing lesson and Annette our resident butterfly painter who was painting live for all to see.
The auctions were a great hit with everything from a Bradman signed bat to a SCG Corporate Box going under the hammer.
The speakers were enthralling with Ann Maree Skelton telling the story of her best friend Bronwyn who passed away earlier this year as well as Catherine Vanisi who told her own story of coming to terms with a disease that has impacted not just on her life but also on the lives of two of her three sisters.
Thanks must go to Robyn Spencer of Harmony Events for volunteering her time and effort as well as Judy Rough as Chair of the Gala Dinner Committee.
Thanks to all of those who volunteered leading up to and on the night itself, and those very generous people and companies that supported us on the night.
| SGC
Trust |
Reynolds
Florist |
Baxter Health
Care |
Dick Smith
Electrical |
Heliflite |
| WC Penfold |
ANZ
Private |
La Renaissance Café Patisserie |
Captain Cook Cruises, |
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Maxine McKew MP attends World Lupus Day Open House
(Friday May 9th,2008)
Maxine McKew MP was in the thick of World Lupus Day at Hook House this year both as a special guest and as the presenter of the annual recognition awards.
The new member for Bennelong took her role very seriously mingling with members and asking plenty of questions while afternoon tea was served. She then presented all of the staff, volunteers, members and corporate supporters with their awards.
Highlight of the afternoon was the presentation
of:
Youth Volunteer of the Year to Lauren Hafner
and Volunteer of the Year to Toyo
Sastro.
Maxine McKew with Award Recipents and Executive Officer Ben Jackson
Losing your Hair over Lupus
Nicole Lucas had a point to prove: Not enough people know about lupus!
On the 4th of March she went about changing that in the only way she thought she could make an impact: She shaved off all of her hair.
Not content just to raise awareness in Orange, which lies past Lithgow and Bathurst in the west of NSW, she made it a fundraising event as well. It turns out that there are plenty of people willing to see Nicole without a full head of hair and she raised over $1200 for the Association.
Well done and thanks Nicole, hope the hair grows fast!
The Long and the Short of Lupus in Orange
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John and Linda Hannaford |
Debbie and Jennifer from The Commonwealth Carers Association |
Patrick Raftery talks feet and lupus |
Two people feet apart in stature, share the same enthusiasm for educating people about lupus.
John and Linda Hannaford are at either end of the height scale but they are an awesome team when putting on an education seminar. Guest speaker Patrick Raftery, a local podiatrist, spoke on good care of your feet and the ramifications for those living with lupus.
Debbie and Jennifer, representatives from the Central West Carer Commonwealth Respite Centre, spoke about the role of carers and the support that carers have available to them. You can get more information from
www.commCarelink.health.gov.au.
The final speaker was the Association’s own Executive Officer who spoke about lupus, the Association and the benefits of being a member. There were plenty of questions from the nearly 50 participants, who enjoyed the Ex-Services Club’s generosity in supplying the facilities for the seminar.
Quilt Raffle Starts Today
To finish off a really informative morning Hogan’s Pharmacy and Chem Mart, Peter Smith Pharmacy generously donated lucky door prizes.
Four representatives from Joan’s Quilting Group arrived at the Lupus Association doorstep today with the prize for our 2008 Quilt Raffle.
Pauline Hutchinson is living with lupus but that doesn’t stop her leading an active social life, while also spreading understanding of what is a debilitating and as yet incurable disease.
When asked the ladies who delivered this beautiful prize could only guess at the time gone into creating such a masterpiece. Hand stitched butterflies adorn the quilt, with other butterflies in fabric appearing at regular intervals to follow the butterfly theme that the Association so commonly uses.
Tickets are $2.00 each and there are only 1000 tickets on sale.
The draw will take place on May 9th at Hook House during our World Lupus Day Open House.
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