Support Activities

 

Links to support activities for: - Petition to Start Lupus Queensland
                                                - Young Adults
                                                - Coordinators  
                                                - Management Committee

Young Adults 

            - Transition care
            - Email Support Group for Young Adults
            - Reach Out
            - Young Carers Project at Carers NSW

Young Adult Luncheon on 29th October-for under 40's and their partners was great fun!!! Pictured below are some of the participants.

Young Adults Support - email

 

 

Transition Care

For young people with chronic illness or disability. Adolescence can be a turbulent time for any young person but even more daunting if you have the added stress of having to cope with a chronic illness or disability. The GMCT Transition Care Program is a new initiative aimed at improving continuity of care for young people with chronic health problems as they move from paediatric to adult health services. To find out more click here.
 

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Email Support Group for Young Adults

If there are any young adults who would be interested in contacting other young adults by e-mail to chat, or discuss any questions they may have about Lupus, Sjögren’s, Raynaud’s, Mixed Connective Tissue Disease etc. Please contact the Lupus Association, or email us at info@lupusnsw.org.au if you are interested. This is a new project and it would be fantastic if young members had a chance to talk and email others going through similar experiences to themselves. If you open this attachment "In the Loop", you will see how easy it is to join this yahoo group. We currently have aprox 15 members aged under 35, and we are looking for more numbers. It is a moderated group, and even though the participants are mostly Australian at this stage we welcome our global neighbours...and it's free to join. If you normally hate support groups you'll love this one :-) 

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Reach Out

Kelly Davidson, our 'In the Loop' young adult newsletter editor has made contact with a brilliant website which is very easy to navigate, clear, and highly informative. This website is for young people and called, 'Reach Out!'

Reach Out! is a website that helps young people get through tough times. It does this through online information and support which offer an anonymous and stigma-free way for young people to get help, explore issues and discover how other young people are coping with tough times. 

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Young Carers Project at Carers NSW 

Young CarerThe Young Carers Project at Carers NSW provides services for young people, 25 years or under, who help care for a family member or friend who has an illness, disability, drug or alcohol or mental health issue. Visit their interactive website to read young carer stories, post questions to the project workers and read frequently asked questions.

Young Carer Project, Carers NSW 
- Phone 1800 242 636 Free call (An Australian Government Initiative) 
- Email
- Website

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Coordinators

Metro Contacts

Name

Area

Phone No.

Bankstown Vacant  TBA
Blacktown Carol Page 9671 4878
0403 304 833
Blue Mountains Karen Dando (02) 4739 4412
Campbelltown Kimberly Kilgannon TBA
Eastern Suburb Margaret Kennedy 9665 0060
Northern Beaches Marissa Giuffrida 9948 8133
Sutherland Narelle Baker 9567 8351

Country Contacts

Name

Area

Phone No.

Bathurst Kerry Armitt O'Neill (02) 6332 5153
Border Rivers Region Judy Heinemann (02) 6752 9138
Byron Bay Sue Edwards (02) 6685 4440
Coonabarabran Loy Frater (02) 6843 1022
Cootamandra Robyn O'Keefe (02) 6884 6375
Dubbo Judy White
or
Marlene Wheeler
(02) 6884 6375

(02) 6884 0564

Gosford Bev Keats (02) 4324 5517
Grafton/Clarence Valley Venette Hedges (02) 6646 0296
Hastings Region Malee Lipman
or
Judith Cowan
(02) 6582 3951

 (02) 6582 5984

Hunter Valley/New Castle Karen Hansen (02) 4937 2834
Kempsey Gayle Joyce (02) 6566 8025
Lismore Ann Thomson (02) 6621 6368
Murwillumbah Christine McKinnon (02) 6679 1202
Narrendera Pam Ashcroft
or 
Margaret Oxley
(02) 6959 1172

(02) 6959 1172

Orange Linda Hannaford (02) 6362 1650
Sapphire Coast Christine Gough (02) 6494 4169
Scone/Muswellbrook Barbara Wakem (02) 6545 1798
Shoalhaven/Nowra Joan & Ian McCauley (02) 4421 5907
Taree Margaret Wilkinson (02) 6552 1246
Wagga Wagga Susan Davies (02) 6926 3669
Wollongong Vacant  TBA

 

Management Committee and Staff

President Judy Rough
Secretary Nicole Yammine
Treasurer Matthew Turner
Committee Nadene Veitch
Committee Robert Pearce
In the Loop Editor Kelly Davidson

Executive Officer

TBC
Account & Admin Mgr Angela Hafner

To contact the Management Committee email here with your request or comments.

 

Petition to Start Lupus Queensland

The mission of the Lupus Association of Queensland will be to work towards a world without Lupus and associated connective tissue diseases through support education and research into a cure. 

It will have at least six Queenslanders willing to start the Inaugural Management Committee who, in conjunction with all its members, will work towards the formation of a national body representing all lupus patients in Australia and will work with other state based lupus organisations to support and educate their members and local communities.

Click here to complete the petition form.